European Reference Networks
European Reference Networks (ERNs) are EU-funded, cross-border networks that bring together highly specialised healthcare providers to improve care for people living with rare and complex diseases. By enabling clinicians across Europe to collaborate virtually, ERNs allow expertise to travel rather than the patient, supporting more accurate diagnoses and access to specialist treatment.
As a Healthcare Provider (HCP), Sahlgrenska University Hospital is an active member of 13 ERNs, covering areas such as cancer, neurology, metabolic disorders and transplantation. Through its participation, the hospital contributes to European knowledge exchange, clinical development and research, helping to strengthen highly specialised care both nationally and internationally.
Sahlgrenska University Hospital participates in the following ERNs:
- European Reference Network for Paediatric Cancer (ERN PaedCan)
- European Reference Network for Rare Adult Solid Cancers (ERN EURACAN)
- European Reference Network on Rare Endocrine Conditions (Endo-ERN)
- European Reference Network for Rare and Complex Epilepsies (ERN EpiCARE)
- European Reference Network on Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases (ERN-RITA)
- European Reference Network for Rare Craniofacial Conditions and Ear, Nose and Throat Disorders (ERN CRANIO)
- European Reference Network for Rare Liver Diseases (ERN RARE-LIVER)
- European Reference Network for Rare Respiratory Diseases (ERN-LUNG)
Centre for Rare Diagnoses
Sahlgrenska University Hospital’s participation in the ERNs is supported and coordinated by the Centre for Rare Diagnoses (CSD Väst), a centre of expertise and support for patients, families and healthcare professionals affected by rare diseases. Based at Sahlgrenska University Hospital and serving the entire Western Sweden Healthcare Region, CSD Väst works to coordinate care, provide information and guidance, and connect patients with specialised multidisciplinary teams.